Frightility Part Deux

 We are IN this. and I should have written sooner if I was going to document this properly, but I didn't and here we are so this might be a two part-er of part 2.

It's literally fine.

So let's begin.

So since we last spoke, I had my egg retrieval, and my transfer and there has been emotions on emotions. 

Also, I am basically a doctor now, because I am going to school for medical coding and ALSO because I give myself so many shots that I should be charging myself a deductible and Tricare should be paying me but that is neither here nor there. 

So we did a couple of weeks of shots to produce more follicles which hold eggs,  the follicles can hold anywhere between 0-2 eggs.  They have you develop more follicles than normal so that way you have the best chances.  Well when I woke up, they had egggstracted 16 eggs, which is incredible.

8 of them made it through the fertilization process and 6 of them made it through the cryopreservation process after developing for more than 5 days, which means they have more likely of a chance surviving because there are a lot of cells. 

So I had 6 Capt America Babies.  

Well during my egg retrieval they had to perform a surgery to make sure I didn't have anything adhering to my uterus which would prevent implanting, so they went in and when they go in to make sure they put more saline in there  which would destroy the embryos, so I had to wait a couple of weeks * a month to be exact, before I could start to prep my body for a FET, aka a Frozen Embryo Transfer.

We did our Frozen Embryo Transfer on Monday Oct 9th.

And you know how I like to keep things super interesting....I decided although advised against.. to do 2 embryos.  Yes, I said that correctly...2.

The reason they usually advise against is because those embryos can, also multiply.  I could have more than 2... but in my heart of hearts I knew that God wanted me to do two. I couldn't stop the force that was coming at me.  Something kept pulling me to do two, so we did two. 

I hope it means something.  I guess I am writing now because between crying every 5 minutes over silly things, and the exhaustion that I am just finally at a point where this is it.

We find out tomorrow morning if I am officially pregnant. And I am honestly so petrified.

I have done everything, absolutely everything in my control to make this happen.. and its now completely out of my hands. I can't take anything I can't do anything at this moment to change the outcome. 

and that terrifies me. 

This is the truest testament of faith that if it is meant to be for us it will be and if it is not then it is not. 

And I have to be okay with that.

I am in completely over my head and I have to be strong regardless of the news tomorrow.  

I really don't know if I am more scared that it did take or if it didn't. I really don't know. 

But I do know that I am scared. I do know how I felt went I saw those embryos go in. I do know my husband is the best partner that could ever exist.  

Seriously though. I have been on hormones since August.  I have already shown him so much crazy that its unreal, and he has been patient with me and this has been really hard on the both of us.

I guess I am just so nervous that I don't know how to be right now.  We will find out 15 hours. 

Shit I am losing it. 

Fruitility Journey Part Un.

 I have been honestly debating back and forth on writing about this, but honestly... 

this was the whole point of this...right?   The vulnerability... the honesty.. the actual journey. 

I never thought I would get this far to be fair. 

Well we pulled the trigger so to speak, and decided to do this damn thing.  I am not getting any younger and is there ever really the right time to have a baby. 

I could make 100 excuses of why I am not ready.  But I think the only reason I wouldn't really be ready to do this is the fear that my body would once again let me down and would prove my inadequacy to be abundantly clear to God and everyone.

 But screw it, right?  

Well I have started my journey with a fertility center here in Colorado.  They did this amazing thing here where they have actually made it somewhat affordable. 

I went in for my Baseline at the end of July after our phone consultation, where this guy was like Hey you guys are ideal candidates, which I think really just meant that we could relatively afford it.

The baselines were just hella blood being drawn to see what I needed to start taking or stop taking to get this vessel to start vesseling? 

Guess what mother truckers... I was really worried at 32 that I would not have enough stock or eggies left to do this without worrying and homies... she be fertile as a mother.. literally.  Which is awesome and my hubs swimmers be swimming, so to speak.  So that is amazing news.

I had to go in for a test called a Hysterosonogram.. aka the Balloon Test aka how many things can we fit IN there.. 

Yes IN.

So its a saline ultrasound.  The first put in the speculum, and for all my none ladies reading this that means that cold metal pliers looking device to prop your girl open, and then they put in "a very thin catheter" and if you have been following my story you know my hate/hate relationship with catheters... like no one wants that.  And THEN they pump in saline into the uterine cavity AND THEN they, also, put in the ultrasound probe.. or the vaginal wand or whatever you want to refer to it as to see if there are like any abnormalities such as polyps or really anything that could prevent the embryo from implanting in the uterus. 

I know I basically sound like a doctor. It's crazy, right?

But if you read back on that.. that's too many things going on in there.  Almost got caught up and thought my situation was Mary Poppins' bag, huh?  #metoo  Ooo is that an umbrella.. and a watch.. and oh dang not a Land Rover... all of it. 

Well during the test natch I am extremely uncomfortable.. too many things in there and I am not on Porn Hub, and I am not getting paid for this.. I am paying them to torture me.  BUT anyways, after they put Niagara Falls in there and remove the catheter they should be able to see what's going on in there to make sure is just the best looking Ut out there and low and behold as soon as they removed the catheter my Uterus closed up like a venus fly trap.. couldn't see a damn thing.  Well reported by the very nice tech she said that there might be a polyp, which we will have to surgically remove... stop it.. I can't.

I am hoping it doesn't prolong the process, but it might.  We will have to wait and see until we go in for the egg retrieval, which I will already be put under for.  I am not stressed... I am, also, lying. 

I did get all of my meds in which is probably the most aggressive amount of shit I have ever seen in my entire life.  I believe it ends up being around 90 doses of medicine in roughly 5 days and majority of them are shots.  You know I just love me some needles. 

I will start my injections when I start my cycle.. which should literally be any day now.. if I stop stressing out. Which.. I mean calm? me? ever? Literally no.  

Also, some of the medications expire in 2 weeks.. yes.. expire. The definition of use it or lose it. 

It is a lot. and I mean A LOT. And I have been looking up stats which is like Googling your symptoms...never good.  30%...

Do you realize 30% is like what you get on your SAT if you put your name on the exam.. You don't even have to really try anything to get a 30% on anything.. 

But shit... I mean I have come this far.. and 30% is better than 0% right? 

I don't even know anymore.  I have been praying so much and so hard and have to remember to be patient and remain positive regardless of the storm we are weathering. 

I really am just scared. Very scared.  I want to feel deserving, I want to feel confident, I want to feel hopeful and excited. And I am just so nervous for the shoe to drop and to be devastated.  I am petrified to be excited. 

So I will be waiting for my period to start and in the mean time watch videos of people giving themselves shots subcutaneously. 

Holler. 

Off the wagon? On the wagon? Something about a wagon.......

Well I’m back on my bullshit. I swear I only start writing when I’m close to losing my shit. 

Two weeks ago I decided that I was dying. Knees and Spaghetti style with some mild vomiting.  It was my right side that was in excruciating pain.  

If you’ve been keeping up with my shit then you would be like 

Oh man Kels isnt it usually your left side, and I would say yes yes it is but not this day.  

On God I thought I had appendicitis.  Even FaceTimed or whatever Google’s shit is for the time where I can see your face. And pointed to where it hurt like he is a doctor. 

I finished whatever I was doing (I was going to say doing laundry but I don’t do that, and I was going to say cooking but I definitely don’t do that either, but I was doing something) so I waited a minute to call my sister in law to come snag me to drop me off at the hospital. 

They get me checked in pretty quick.  People have been avoiding the hospital like the plague lately.....

Get it.

Well I hobble in there and I end up knowing the scribe.  Cute little thing. 

We end up loading me up on some pain medication to make sure I start to feel some kind of relief because by this point I’m basically dry heaving. 

Well CT scan shows I had a cyst rupture.  COOL. I tried to explain that me having cyst is so 2013 and that I am not looking for a B2B. 

They can’t do anything for ruptured cysts due to it happening already.  So they load you up on hydros, and morphine and you just head on out.  

It’s wild to me how they do that.  

They don’t tell you its going to hurt for days. But what is pain at this point anyways. Constantly feels like a figment of my imagination.  It’s all in your head. 

I swear there is enough shit in my head. 

I have been trying to maintain that its not a big deal at this point. Chronic pain feels so played out. Can a girl get some Chronic Pleasure, or what ever that type of weed is that I smoke.   

Honestly when I talk or preach or feel anything about it, it feels like a broken record. 

I am supposed to make an appointment to see the ultrasound specialist to check out the ovaries to make sure they are chilling where they are supposed to be and they are not covered in cysts, which hoping they aren’t.  Don’t tell my mom or my roommate that I haven’t made the appointment yet. What are they going tell me.   Let’s getttem gone (I live in Oklahoma thats how everyone talks..I’m kidding...I’m not)

Sounds made up... just like when my roommate told me that your periods don’t control if you like someone or not.... SOUNDS ::claps::MADE::claps:: UP.

Anyways, I am putting it off because I’m in the middle of opening up a restaurant and sound like something I don’t have time or effort for. 

I’ll just do what I’m good at which is burn it off a both ends and become a hermit psychopath.

And I know I’ll be the best kind.  

Loca Loca Loca

I feel fucking crazy.  That's a fact.

Things were getting worse, the pain, the anger, the sadness, the lack of sleep and patience.  I am tired.

But I've been tired.

I really didn't think I needed more help after finding out that Endometriosis was my fate.  I thought I had dealt with my shit pile of cards and things are awesome and I'm going to put my every being into my career.  I'm going to let fate decide my relationship status and I'm good.

then why the fuck am I so angry.

Finally I decided that I'm just not trying to be this person anymore.  My emotions controlled my life. Basically I'm attempting to break up with my anger.  Which He is kind of a douche bag and treats me like shit, so naturally I'm in love with him. 

I decided the best way to break up with my anger was the only plausible decision which was to see a psychiatrist and get better drugs to make me less angry and sad. 

Makes sense.

So ya girl calls Dr. A.  She is in my network...one of the reasons I chose her and Like dude I don't know her.   She can't help me if I'm not honest.  So we Zoom meet which is like the 2020 skype.
And I send her all 45 pages of how I am feeling which  like one question was

"list your traumatic experiences"
And let me tell you nothing gives you PTSD like writing out every single thing you bury so deep to forget but you know that you need to tell her or the anger and sadness doesn't stop.

So you tell her.

We are talking via Zoom because of the Rona and She asks me more questions like my fucking novel that I sent her wasn't sufficient enough to make a diagnosis.

And Dr. A blurts out the most obscene shit I've ever heard.

"Kelsey you are bipolar"
At first I was like excuse me B word you are bipolar... I 1000% thought she was being rude and then I had to remember she is a psychiatrist and like those words actually mean something here.

What.. Bipolar.  I'm not bipolar.  There is no way I am bipolar.  I am not crazy.  I don't have anything wrong with me. I have been just fine.  I don't need this.

bipolar: extreme highs and extreme lows.

fuck I'm bipolar.

She starts listing all the medicines I need to start taking.  I keep it together as she tells me she is calling in my prescriptions.

We hang up and I'm sitting there with myself.  I am bipolar. It felt like a bomb had dropped on me. 
I always thought everyone felt the way that I do about things.

Realizing you are different hurts. You aren't like everyone else.  Your brain isn't right. My brain isn't right.


I have been on these happy pills for 3 weeks now.  So Strange.

My first move was to realize there was something not right and make a change.

There is nothing wrong  with being bipolar,  I am still me. I haven't lost myself. But there are more good days than bad.

It's okay.
My brain isn't right, but it's okay.

I Knew I Was Right

Being told it's all in your head is beyond discouraging.

Makes you doubt yourself and your sanity.

I did for a long time until recently.

On December 20th, I had my first surgery since 2015.  I felt so crazy the last few years with them telling me the pain I felt was a nightmare of never-ending turmoil. 

I was getting trigger points and doing physical therapy.  It always felt like maintenance for something none of us knew about.

I haven't mentioned my surgery on here, yet because I've been scared.  I didn't want to go down that road again of no answers, more doubt, and shame. I haven't known what to say or how to feel. will my story make sense...it doesn't to me so why would anyone else get it .

I know what you are thinking, "Why shame. There is nothing to feel shame for."

I felt alone and empty.  Maybe the pain for years was in my head. Maybe I was overreacting. Maybe I was being a hypochondriac.

This surgery validated my truth.

I was hospitalized 3 times for pain in the last 5 months.  Never any answers.
Just dope her up on some pain meds, that must be why she is here. 

My father and his wonderful amazing friend Dr. B, decided that we can't keep doing this.  They sent me a list of new doctors.  I called all the second on the list.  Dr. C we shall call her.

I pleaded to the nurse on the phone through a soaked face and they got me in so quickly. I knew Nurse R was going to be my saving grace from her concern at my first visit.

The room this time was something from a hoarders episode of all things pink.  It was absolutely frightening, and nothing I wanted to be exposed in.
I have only been in there twice but man just like it's a girl gender reveal threw up all over that room.

Dr. C was stern but kind.  She basically said screw it let's find out.

Scheduled me for surgery two weeks from the date.  This hospital was a little different.  They weren't saying prayers over you before you go in but they do make you feel all warm while you lay there naked.

Life is so out of control sometimes, that it's an honest to God blessing that you have any control ever.
Maybe the color of your hair or the nails on your fingers, or the tattoos on your body, but that inside stuff, nah...
you get what you get and you don't throw a fit.

When I woke up I always worry because out of anesthesia I am a total mess, either mad or sad....
basically it is how ever you are drunk is what the Post-Op nurse told me. 

I was sobbing. Like a little drunk girl who just was broken up with....a total and utter complete mess.
She told me I have endometriosis. 

I knew I was right.

How does one handle that?
How is one supposed to deal with that?

Here is this disease that will have your uterus grow into parts of your body it is not supposed to be and there is no cure but you will be in pain for the rest of your life.

I wasn't crying because I was sad.
I was crying because finally someone heard me screaming my lungs out that something was wrong.
Dr. C heard me.  I thank God for her every single day for hearing me.


It's been a little over 2 months post-op.  My belly button ring closed up again which is annoying, and I have a little scar on top of my C-Section-esque scar. 

I am taking more prescription drugs to numb what was there.  They said it should be at most two years before my next surgery.

Math tells me that's going to be a few surgeries left in my life time.

Sometimes I ask myself was it worth it all knowing what I know now....even though there is nothing I can do...
I would have to say yes, because at least now this demon has a name. Now I won't be told it was in my head. Now it won't hurt me because I know it's real.  Now I won't be sad thinking that I did this to myself.

Overdosing is Less Than Everything Else

Well I never expected it to be this long since I have written.
I have made up every excuse to avoid being vulnerable again or seem like I need a grasp on life or help.
But I think it's time to get back to myself and figure out what I am missing or what I need.
If it sucks it's because it's been too long and I am technically so far out of school that I might not even recall the difference between their, there, and they're...(I'm kidding about that last part. Yikes)

I have been so busy with immersing my every being into my career, to where it is making me bury everything else and now it is biting me in the ass like it always does.
  I have had a lot happen since I have decided to write again. So a recap I guess would serve a purpose because.. well I really don't need an excuse..because this is my story anyways..

I tried the internal shots.
And the first time it was like God had bestowed upon me the feeling of what a pain-free life would look like.
Well that's a stretch...the path is anything less than ideal.

A giant needle penetrating your muscles in your pelvic floor...::no no I don't like that::

It was the worst pain I have ever felt in my entire life. We ended up doing 8 internal shots. Dr. T was putting gauze in places that I didn't think one should put gauze. I started to freak because she was like WE NEED GAUZE, and said it in a urgent manner like she had just cut off a piece of my body. 

 The tears were worth the terror.

I have done 8 rounds of shots. Two internal and 6 external.  I have only done two internal because the first time was awesome but the second time made me so sick. Dr. T shared some dark Dove chocolate to settle my insides. Turns out if you are on your cycle it sends the muscles into shock and causes your body to freak out. And it did.  IT really did.

Dr. T said shots are not a permanent solution and I knew that and she knows that and we all know that, but I was scared for another surgery and scared for the pain and scared for the pills.
But I didn't want to say I wouldn't try.
We discussed changing my medications up. What's ONE more pill.

 I was taking 20mg of Lexapro to manage my anxiety and they decided to switch me over to Cymbalta.  This anti-depressant is also an anti-spasmatic. 

Well in the laws of the drug world you can't stop taking one and start taking another.

You have to ween off that shit.  So we decided to take me down to 10mg of Lexapro for a week, then 10mg with 30mg of Cymbalta, and the 10mg of Lexapro with 60mg of Cymbalta, and let's just say 60mg with 10mg is too many mg for my body.

I overdosed again. 
My muscles were in over drive.  I couldn't stop moving, I  couldn't talk, I hurt all over.  Brandon rushed me to the ER and my heart rate was 170 resting. My blood pressure was through the roof. They admitted me and pumped me with Benadryl and fluids through my arm and instantly was completely drugged up.  No idea what happened and then Brandon took me home.

It was like a dream. I didn't know when I woke up if it happened or not but I did feel like I was hit by an underage drunk driver again. Prying myself out of bed like they pried me out of my vehicle.
 And I went back to work the next day. 
I am back on the Lexapro and feeling better. 

It's dark in life when you mess with something that stabilizes you.

We still don't have a solution, but I guess I'll be getting my next round of shots on the 11th.

Life is crazy sometimes. Depression is real. Confidence and perseverance really are key to creating normalcy in a body that you wish wasn't yours. 

Triggggggered

So I am sitting here after being checked in by the very young and kind front desk lady.  I swear the vibe in there is very similar to an airport terminal awaiting to board an aircraft and I'm hoping through that door is a trip to another place, another moment from this one..
It's always a little rough to sit in the OBGYN waiting rooms.  There is always an over abundance of expectant women with their loving husbands waiting to see ultra sounds of their little ones.

Wouldn't that be cool.

But on the contrary some are just there for their yearly, you can always tell because they look a little less tense.

Me, I'm just waiting for relief.

It seems to take eternity, especially when you are nervous.  I am trying to conceal my worry with writing at this very moment. I am back to see Dr. P today because I am to receive trigger point injections again.  I have previously wrote in regards to this and still never seem to remember the exact emotions I feel.

They called my name and it felt in a brief moment like an echo. I got up to head to my destination.

The first step is always blood pressure and weight.  I was talking so much to mask my nerves that the machine wouldn't take and she finally had to kindly tell me to stop talking.
It was normal.
Then I was weighed. 116.  Seems I've lost quite a few pounds.

We head back to the room and the kind nurse asks me roughly 237492349 questions on what I'm allergic to and how I feel.
After we had gotten to know each other like a script I've recited so many times that I've committed it to memory, she did what happens every time,

"Please undress from the waist down, someone will be right in"

I take off my sweat pants and underwear and neatly fold them on the chair.  I do something I never do; I kept my socks on.  As you well know, I don't do socks when I take my clothes off. It stresses me out.  But today seemed different.

I laid back and looked to my right and there was a picture of a setting sun on the water.
My destination.

I began to think of something my father said today to me, Embrace the suck....
Lately there has been a lot of suck in my life. The feeling lately of being taken for granted.  The feeling of putting myself into all I do and having nothing for myself.  I put every single ounce of all who I am in my job, in my relationship and in other random little parts of my life.
It's been so rough of me mentally. Very rough. Not sleeping. Not eating.
I've shut down in all aspects of my life.
Except one.

In the room, I kind of feel tears welling up in my eyes and I began to pray the Hail Mary and the Lord's Prayer, back to back, in a whisper because it's just for Him and I.

There is a knock at the door,
"Come in"

It wasn't Dr. P it was her PA, we will call her Dr. T.  Well Dr. T is this super skinny, beautiful, soft spoken little angel.  I really wanted to ask her where she got her skirt from.

She came in with a nurse who had the best resting bitch face I had ever seen in my life, and the only time she opened her mouth it was to ask if I wanted to hold her hand.

Dr. T placed little x's on my body to pin point each area she was going to insert the injections.
There were at the time 9 sharpied X's on my body.

She then asked me the most horrifying thing I've ever heard in my entire human life.
"Would you like an internal shot as well"

Excuse me...what...

My face must have looked horrified, the only words that could leave my lips were,
"That's a thing...."

She began to explain how it would really help my condition, but as she asked me the 1.25" needle was in the nurses hands and I couldn't even imagine putting that inside of me or wanting to even remotely do that at all.
It was a no from me dog.

I told her I would think about it for the next round.

I was all prepped and I was laying back becoming anxious again and I finally looked at that beautiful  RBF and said please hold my hand.

The first few are always the worse. But the lidocaine takes control and the last few you feel nothing.  The soreness is coming though. We decided on 10 shots due to the amount of serum left in the vial this time.

After she finishes, I lay there and she tells me to not get up too fast. Move when I am ready.
I don't cry this time.

I have three more appointments scheduled, two being in the month of December.

I have found through all of my reflection and inner thoughts that I have been putting everything under the sun over myself: my feelings, my mental health, my physical health, my sanity.

I matter too.
God I matter too.

I'm worn so thin that I have just shut down.
How do you come back from that.
I just need to breathe.

God I matter too.

What's Wrong with Your Head.

Mental stability has never been one of my strong suits.

During my high school days I was seeing this psychiatrist, whose name I don't remember for some pills that I can't forget. 

I was going through typical "My parents don't understand me, and I am a failure because of my grades and my need to drink during the school day" high school slump.

I was a typical kid that didn't technically need to be on Lexapro and Paxil.  But I was. 

I stopped taking pills right after high school.

Then proceeded to resume my pill poppin after my 25th birthday.  My docs decided I need them because I couldn't have children.

I was going through the typical "I am unable to bear children, No one understands me.  I have lady parts for no reason and my need to be drunk during the day" mid-twenties slump.

I needed Jesus, not pills.

After my fiasco, where I took too high of a dosage of pills (talked about it "Well That Could Have Been Bad), I decided no more for me.

The only pills I take daily now will be BC, God Bless that baby chewable pill that causes the stopped up drain of what is my "reproductive system"and of course, 800 MG Ibuprofen, famously known as the Holy Grail of tablets, that was placed upon this Earth by the gods to cleanse my soul of the gut-wrenching agnoy that comes with being Kelsey.
#shoutouttomyliver

Well as of late I have not been "allowed" to take Ibuprofen. 
Long story short:
Football, my face, a dudes face, both facing the ball, collision, knocked out, concussion, ER, impact testing fail, memory loss, not better.
Sadly, that is the shortened version.

I apparently I'm not "resting" enough to be better, which sucks but, I am a busy woman, Dr. M. I got my heart and soul into my career and I can't just put it on hold.  I can compromise, but I can't stop.

Dr. M is really nice.  I've seen her twice now.  Her fingers are cold. It's not a bad thing.  She does look familiar, but not in a way that I know her.  Just like it feels, like I have seen her at a coffee shop or something, like 11 years ago.   You know, familiar but, not.

I really hope I don't lose my hair because my head is all lumpy now.  It would look terrible. Like a fused together peanut M&M.  I don't know... maybe that is a terrible explanation, but that's all I got right now, which isn't saying too much.
I don't really "got" a lot right now, except a headache and a need for more sleep.
I guess this is what the Scarecrow felt like. 

I could eat an M&M out of that.

They never tell you that physical pain takes a toll on the body after a while.

That's the reason they drug you up.  To make you feel that the constant, annoying torture isn't just physical, but it's mental too.

A way to make you feel that the aches, night terrors, and consistent self-doubt is this plaguing misery is all a fabrication in your mind.

When it's an everyday event you feel crazy.  You feel that there is absolutely no way it can be every single day.

Do I look as bad as I feel?  Can people tell?

Can they see that scar I have has lost coloration.  The dent from the steroid shots....  Can they see it?

 I could can fit a M&M in it.  A red one, of course.  I only like red colored candy.  I will eat the other ones, but I don't particularly love it the same.  It's a mental thing, right?

Lately the mirror has been my nemesis.

I will stand there and stare.
Because I am looking for the good.

I have cute toenails. I have always though the shape and size was something of a fetish foot-model status.  I could be wrong,  but I do feel like I have that going for me.

I am in a struggle to get right with Jesus.  Not that I haven't turned my life around for the better. Far less drinking than my previous life, and I have only worn one scandalous shirt in the last 6 months.
But my life has turned into a bad sitcom.

There is a lot of fake laughter, and a farcical screenplay.

I think I just need a change of scenery.  I have lived her for 11 years now.  It's far too long for my liking.  I know it sounds like I am running away.  But I am really not.  I am just playing with the idea of something different.

Like a coast.  I told my mom I should start to do drugs so they can send me to a fabulous coastal rehab facility.
 Don't worry I am not going to actually do that.  I would be a terrible drug addict. 

I just have run into this issue where I put everything and every one else ahead of myself.

Am I cursed because I have been taught to be caring and selfless?

So when others aren't I don't understand and I try to make up for the fact that they aren't.

I can't stop. It leaves me in shambles, but I can't stop.

I am a lover.  I want to be the best person I can be.  I want to be honest, caring, selfless, adventurous, kind, and above all hopeful.  I hope that if I am kind enough it will help anyone treat others better.  With a kindness that is out of character.

I know I can be temperamental. I have no excuse.  Everyone goes through something and I no better nor worse.  I just need to find the strength to face the mental block I have endured.

I have been secretly debating doing a photo shoot that embodies the feeling of this "disease".  You can physically see the scars it has left.  Well not the internal ones but my super sweet dent has been prevalent enough to haunt myself image and why not share it.

I am talking crazy.
At least I can eat an M&M out of that.

I Might Be Losing It

It's been a little over a month since I have last addressed anything.

My life has gotten into a repetitious agenda, which is the most feared thing in most mid-20 year old's life.

The goals of my future life leave me determined and enraptured into my current lifestyle.

I did go see Dr. P on Tuesday for a morning dose of 17 shots this time around.  She doubled the numbing stuff, and went a little deeper.

And as invigorating as that sounds..it wasn't as refreshing as one would think.
Yet, I didn't cry this time so I feel like I might be growing up.

I have my next appointment with her in two months, which is moderately terrifying because the shots normally wear off around week 3...but I am sure they know what they are doing.

::does extreme eye roll, where it makes me vomit a little::

So one of the requirements before I go back to see Dr. P is to start going to see a counselor.

I am not good at seeing counselors.

All during my senior year of high school I had to see a counselor, and take pills because I was a problem child and my grades were slipping.

I was a rebellious 18 year old girl and I enjoyed the booze a little more than I should have.

I can't remember his name to save my life, but he was a roller derby coach.  Such a strange dude.
I liked him though.

All I did was cry when I went in there.

I am not good about vocalizing how I feel.  I could write a ten page paper about how my emotions compare to a piece of lint out of my favorite denim jeans.  But to talk about it is another story.  I end up tripping over my own words and crying.

And I don't even cry in an attractive way.  There is a lot of heavy breathing and my face swells up.  I have tried to hold back and do the cute single tear, but it never works out.  I end up with snot and mascara all over my face like I had a cold.

So I am nervous about do thing this.  Dr. P said, "I carry all my stress in my back and you carry all your stress in your "oven"......"

what.

She didn't say oven.. She was a bit more colorful. A lot more V's in the word.  It's fine.

I slightly believe this is a way to get away from the known fact that there is not a cure just ways to make life a little more comfortable.

And let me tell you... it's not.

She said she is trying to cleanse my mind, body, and soul.
Which in medical talk is Pills, Shots, and Therapists.

I am not an expert, but they are making me feel crazy.

I know it is healthy to get out what you feel and address the stressors with this form of treatment.  I know I have some pain there,  I know I still mentally hurt.

But I don't think she or he or whoever is going to change that.  I have thought about all of these things in my mind for a long time.

Or maybe it will change and I will magically be better and my pain will go away because the therapist, pills, and shots have up-lifted the pain from my oven and cleansed my body of all the stress, and I can feel normal.

Bring on the baking.
Yeah, I am definitely losing it.

Trial and Error

Well, I did go see that new specialist.

I was absolutely gut-wrenching nervous all the way up until my appointment.

My original doctor, Dr. S, sent me to this new specialist to get a second opinion in regards to my "situation".

This new one seemed nice.  Understanding.   A real go-getter.

This is what happened:

I laid-back in this small office.  The "internal" examination was over and I was feeling more mortified than any other time before.
I was use to examinations.
But not that.
It was the quickest, most invasive exam I have ever had. Rattling off codes like, they are at a convenience store counting snacks.

Well finally the torture was over, the nurse and doctor left me to change.
At this point, I am fully-clothed, alone trying to salvage any piece of dignity I had left.

After several minutes the doctor and nurse return.
This new specialist had come up with a plan.. which has never happened before.
Awesome.  A plan.. finally.

Now, I can quit wondering around in circles hoping someone was going to pull me out of this bottomless chasm.  

She did say that this is all going to be trial and error. That the muscle is my main issue..  The scarring is secondary.  So for the muscle, she told me to think of it like a Charley Horse.  

....A what.  You are telling me that my muscle has been spasming or involuntary contracting for OVER A YEAR.  And there is nothing we can do about that part.  Nothing. Just let it do it's thing.  

A constant Charley Horse... for over a year.... She must be out of her mind.  

So this plan:

First, some kind of numbing trigger point injection shots to my lower abdomen. Cool.

Second, Pills to fix the nerve-endings.  Eh.. Skeptical..

Third,  More physical therapy to strengthen the muscle. Okay I guess the last 12 weeks didn't mean anything

Fourth, surgery to remove access scarring.  I knew this was coming.

So anyways, with the plan underway.. First things first.  A shot.

Well I thought it was going to be A shot. A as in one.  As in singular.  Well that my friend was not the case. 

14.  yes 1-4...10 plus 4  shots in my lower abdomen.  

This needle was no joke.  A concoction of medicinal potions to relax my trigger points.  

Looks like this:

My new doctor prepped the area with a copper-looking solution on the largest Q-tip I had ever seen.  

She covered the whole area a long my scar.   

This shot was supposed to relax the muscles to give me some kind of relief. 

The doctor told me it was time. 

The nurse grabbed my hand.  

As the first shot broke skin and entered my pelvic muscle I felt the water pour out of my eyes. 

I gripped the nurses hands harder.  I couldn't stop it. My ears were becoming clogged with my tears.

When they stopped, I had 10 shots on the left and 4 shots on the right.  They covered the injection points with a neon yellow, and neon orange bandage.
 As if I was going to forget what just happened by covering it up with the coolest bandages I had ever seen.

(I have never shown my scar before on here before today.) 

Those little dots are each an injection point. Cool, huh. 

The visit was over and I had to then proceed down the stair to the pharmacy, for phase Two.  Pills for the nerves.  Remember I had tried this other kind back in December or January that really messed me up... Remember? Well my specialist assured me that this was absolutely nothing like that at all.  

So I believe her...... like an idiot. 

She told me it was going to make me tired.

So I took one 30mg pill as instructed at 21:45-22:00.  It wasn't until 0330, that rest had found me.

I woke up the next morning to a phone call from my mother checking on me after my shots.  I couldn't move.  I don't even remember what we talked about.  I don't remember her coming over.  I don't remember how she got in. 

I don't remember anything.  My eyes were dilated. I felt like I had a lump in my throat. I was gagging and vomiting.  My body felt paralyzed.  

Not again.. not again.  

I called the nurse with no answer.  I emailed the doctor. No answer. 

I knew the only thing I could do is ride the storm out. 

I started to finally feel okay at 16:30.  I don't know what I would have done with out my mom. 

So, Now are still at a standstill. Now we have tried step one and two and they were both nothing but a trial and an error.

I am really trying to be hopeful but it is so hard when it is one fail at a time.  

I see Dr. S next week.  I am hoping for more answers.
I still will be hopeful.

If the sickness doesn't kill me, the medicine sure will. 

Another Day, Another Doctor

Well I have one more trip saved up to see Dr. B, the physical lady therapist.  We actually found that electrotherapy is working to decrease the pain for a few days, which is a complete turn around from the pain being every day.
See, I was supposed to go on  Friday for my last session, but naturally, due to my recent increase in age on Wednesday my body decided to get sick with streptococcus.

It sounds like a dinosaur.. Streptococcus

But I was on the rest of bed for  few days when, I realize that at the ripe age of 26, I cannot truly take care of myself in a healthful way when I am sick.

Which has become a regular thing with the uterus, the colds, the headaches, the chills, and the allergic reactions to everything.
I'm like a walking, breathing sickness. A ticking time bomb of disease waiting to ruin your week, your month, or even your year.

I was house-sitting for my lovely mother this weekend so she could go visit my pops in search of new land to purchase in CO.

After this weekend, like, we are lucky all cats, dogs, and I survived it.

I might have to move with my parents because this whole adult-thing when you have an illness, stacked on top of a disease is far beyond what any one person can handle alone.

So, as my trips to the doctors increase, the less I believe they know what they are doing.

Hear me out

When I went to the doctor about my Strep they prescribed me medicine that was "cousins" to a drug that I am highly-allergic to.

So I said Hey I am not trying to waste my time here.. is this safe for me to take, you're the doctor but I have a feeling that this isn't a good idea. 

They reassured me I would be fine...... blah blah blah.

And of course, I wasn't.  The medicine wasn't fully in my system until later that night and I started hiving-up and being all types of itchy. So, naturally, I had to take MORE pills to get rid of the adverse effects of the medicine.

Thursday due to all of this crap I had taken 9 pills total due to the doctor not listening to my concerns.

Rookie Move, Dr. C.

I am doing better from the Strep now, so I can tackle the next appointment up ahead.

Which is tomorrow.

I am meeting with a new specialist (That will be my 6th specialist this year) Dr. P to get a "second opinion", and she specializes in reconstructive surgery.

This will be my last surgery.  I will not keep doing this.  If this is the only way to fix it. Take it all.
I cannot keep living in this fear. Living in this pain.  I don't even feel like I am living anymore.  I am just in all this annoying pain all the time and it is annoying, for me and for everyone else.

I am losing everyone around me because I am no longer fun anymore.
It is driving me insane.
I hate this.
But I am hopeful for tomorrow. I am hopeful for some new answers.  I have been praying like crazy hoping for something to give.
I'll remain hopeful.

Snipped, Glued, Stitched.. All better, Right?

Well turns out I didn't die on Monday, so that's dope.
And the Tubes are gone, yo!

We arrived at the hospital at 4:45 for my 5 am check-in.
I had slept maybe an hour and a half, which is a big deal.

I had finally entered my room
I, of course, managed to get the gown that doesn't tie in the back because the string has been cut.
I try to get away with wearing my underwear and sports bra.
The nurse just shakes her head at me.

Naked it is. The gown barely covers anything.  I did shave my legs for the occasion.
I put the hospital socks on, which is out of my norm.  I don't like wearing socks, when I am naked.

I get all hooked up the the IV and the nurse tells me the anesthesiologist,  Dr. Stark was coming.

I immediately asked..
..... Tony?
The nurse said that she was a woman, and that she didn't know if her husband's name was Tony.

Poor, stupid, beautiful nurse.

Let's just say she could have been Tony Stark's wife.  She was gorgeous.

At 7:03, I entered the surgery room.

I woke up at 9:30 in my room for the night.  I was hooked up to an IV, breathing machine, pulse checker, catheter, and some things around my calves to make them move so I wouldn't develop blood clots in my legs.

I don't remember a whole lot from that day, but apparently I said some funny things.  My parent's made a list.  And took pictures.
When my brother arrived they took this one.

Apparently this is what I look like when I am sick. 

The breathing tube was weird, apparently the nose-like part on it measured my CO2 and if I took it off then the machine would beep uncontrollably, and then I would be yelled at by one of the nurses on the staff to keep the tube in.

I probably begged the nurse 87 times to take out my catheter; mixing it up how to ask her every time she came back in.

"Hey will you get me some ice chips, and oh, and take this catheter out"

or 

"What does this button do, and oh the catheter, take it out." 

That thing is the bloody devil, and I hate it. 

My brother and my older sister came to see me.  I remember more when my older sister was there.

She brought me flowers and made me watch the bachelor.  It was torture of the purest, kindest form.

I, also, received flowers from the nicest man on earth whom I can only predict will be the future Mr. to my Yard.  That poor, beautiful man will end up with me on his doorstep with a backpack, and two, one-way tickets to nowhere.  

I didn't sleep worth a damn in the hospital. No one does. 

From being so high on morphine, and the every hour wake-ups, and shots in my stomach from the nightly Nurse Gay, The night was full of misery and business, to say the least. 

I just needed to get the hell out of there.

I finally left around 6 PM yesterday.  I slept like a baby, when I got home. 

I have felt utterly useless today though, and even more, so as I sit here watching my mother fold my laundry.  She is a saint, that I know for sure. 

It feel like the incision it not as big as I had thought.  She did cut through my tattoo, which I knew would happen, but it definitely went from a beautiful quote from my favorite book, to a Rihanna Lyric. 

Graphic Picture. My Bad,

I am not going to be ashamed of my scars.  

I will just tell people I got stabbed saving kittens. Everyone loves a good stabbing by saving kittens story.

Now, I just need to learn how to get up, go to the bathroom, cough, lay back down, walk, and sit without being in pain.

Seems easy enough. 

Let's Get It On (On With it Remix)

I am back to feeling like myself again.


A little obnoxious,  kind of outspoken, and extremely awkward.


I still need to take a real shower, but one thing at a time.


So GUESSS WHATTTTTT......


I  have a surgery date.


T, The real MVP Nurse calls; her causal tone is always very comforting
"Kels? Pen that 22nd date in we are good to go."


February 22nd, 2016.


19 days.


I am so ready.  I will be able to get ahead with all my classes, and be able to focus on not ripping out my catheter out.


I have never had one before. I am interested to see if I can feel myself going or it's just like oh surprise, you're going.


Yes catheter means what we feared, I'll have to at least stay in the torture chamber overnight. I'm not a fan at staying overnight in the hospital.
It smells weird. 
You end up with like 48 blankets that were once warm on top of you. 
You always get this sniffle, cold thing when you leave that last for 24 hours because everyone in that place is swarming with germs.
The whole thing ends up being a mess. 
And we already know I do super terrible on medications from the doctors.


It's cool, I am excited to get this done.
I am ready to start healing.
But, after today I know that I can seriously get through this and be better for it.

Well That Could Have Been Bad.

Well turns out that medicine was way worse than I thought.

So I quit taking that medicine for my nerve pain on Friday.

On Sunday night I had a slight cough and took the proper dosage of cough medicine and went to bed.

When I woke up Monday morning something was very, very wrong.
I wanted out of my own skin.
I need to get out of my own body.
I was purging stomach bile.
I was trembling.
I was losing my balance.
I was seeing double.

I stumbled down to my mother's bathroom.  I sat on her bathtub counter.   I looked at her and tried to say
"Something isn't right"
It came out in a stuttered mess.
I began to cry.

She stopped what she was doing and held me.

Something is very, very wrong.
I couldn't even tell her what was going through my head.

There were no colors in my eyes, only blackness.



(I debated putting this up. But I am. I have shared this with the people I trust most, but this needs to be known. My father took this picture to show the doctor.)

I needed to calm down.

My dad and mom laid me down on their bed.  I was so lost.
Once I calmed down enough to speak so they could understand me.

My dad emailed my professors, and put a bunch of blankets on me.
We called my digestive doctors's office.  They were less than helpful.
We finally made our way to see a doctor.

Finally we were told that their was
"an adverse effect of the combination of medicines" and that I was "going through withdrawals" of this awful, awful medicine.

Ironically enough, it was the first time I didn't feel abdominal pain.



I am still going through some of the withdrawals.
Still very shaky, anxious, uncertain, sweaty, panicky.


It has to run its course.
It's better right now.


I am hopeful that this feeling will leave me alone soon.


I wasn't kidding when I said listen to your body. 
This medicine might work for some people, but I was not one of them.
I have never been so fearful in my life. 
I really didn't know if my body could have handled all of those "drugs".


I joked earlier about being a terrible drug addict.  But who would be?


I share this because you need to be aware of what you put in your body.  I was naïve enough to think that if the doctor gave it to me; it must be safe.  That is not always the case.  I hate to say that, but it isn't.  I am lucky that this combination didn't kill me.
Never Again.

Fueling Blank Faces

This weekend was a very interesting one.
Well I think it was interesting.. But I, also, watched the 1962 version of To Kill a Mockingbird on Friday, as well as, Pride and Prejudice, and Dear Zachary.
Some pretty "lit" night as the cool kids would say.


I couldn't sleep to save my life, which is the opposite of what those "nerve pain" pills were suppose to help with. 
When I finally did fall asleep, I had a dream that my teeth were getting pried out tooth by tooth, and I could feel the hole where they once were.  I could feel the pain of  each tooth getting ripped out of my mouth.  I could feel the blood coming out of my mouth, on to my tied down hands.  I was wearing a white shirt, my hair was pulled back in my typical pony, and I was tied to a black chair; it was wooden. 
I could see my teeth on the table.  They looked like sea barnacles, and coral. 


It felt so real.  I woke up 3 hours later of what seemed like a life time of pain and torture.
"Is this a side effect of the medicine that is supposed to be helping me?"


Hell yeah it was.
I did a little research on these pills the doctors have me on for my chronic nerve pain. 
This medicine is not just for nerve pain, but it's used to treat depression.  It is also used to treat PTSD.
I have no depression issues, and I do not suffer from PTSD.
The side effects include:
blurred vision
change in sexual desire, or ability
constipation
diarrhea
dizziness
drowsiness
dry mouth
trouble sleeping
weakness
headaches
loss of appetite
nausea
tiredness
involuntary or uncontrollable movements (this side effect happens in over 60 percent of patients and is likely to be permanent): in the tongue, face, mouth, jaw, legs, and arms
eye problems (high risk)
chest pain
confusion
dark urine
difficulty speaking, or swallowing
hallucinations
night terrors
fainting
numbness
problems sitting still
panic attacks
unusual or severe mood changes
seizures
slurred speech
aggressiveness
impulsiveness


 There are a few more, but I think you get the picture.
I understand they have to account for every single side effect that could happen or has happened to any person ever taking this medication ever.
But to risk of all of this to help the nerves in my stomach so I don't vomit?
These are the potential side effects.  I have been taking it for 4 days and the mood swings are very real, the night terrors are real, the headaches, the problems sitting still, the tiredness, and the nausea, the loss of appetite ... all very real.
The drawbacks of this medication outweighs significantly the pros of it.
They told me to give it a month.


I stopped today.
As soon as I read change in sexual desire and ability, I knew it was time to throw in the towel. I am already having all the problems in the world with that, no need to Clam Jam myself more than necessary.


I will call tomorrow, but they are just looking for a solution rather than understanding the problem.  How can a medicine that is suppose to help cause that many problems. 
I have felt less like myself a more like a stranger to my own body.


I listened to my body and it told me to stop.
I'd rather feel all the pain in the world than ever lose myself.